Getting better :)

So today is day 9 of IV's so my lungs are starting to feel a bit better again. I can actually breathe again and not have to cough up a lung every 5 minutes. Getting so tired from having to be up early and sleep late though. I need a lie on soon :)

I have been a part of a trial testing the effects of a new revolutionary drug for the past 3 years. It aims to correct the underlying cause of CF by 'tricking' the defective gene into working correctly. It has shown very positive results and has recently been approved by the FDA. It shows significant improvements in lung functions and reduces the amount of exacerbations. It only treats CF patients with the G551D gene. However, they are now beginning trialling a similar drug that will treat patients with the DF508 gene. Onwards and upwards ! :)


http://www.medicalnewstoday.com/articles/240990.php

Ok so I have made my bucket list. Some things on it I have already achieved so I will upload the details of them over the next few days. This blog is going to be an insight into the Life of Lydia. Everyone is fighting some sort of battle, all can be equally as challenging. This is going to be my story :)